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Children’s Palliative Nursing Care

ISBN: 9781032470719
ISBN: 9781032470719
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Διαστάσεις 25 × 18 cm
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Περιγραφή

Nursing is an essential component of children’s palliative care and palliative care is an essential aspect of nursing. Yet the complex inter-disciplinary nature of palliative care brings into sharp focus the work nurses undertake with others in delivering palliative care. This is, however, a book by nurses for nurses.

This comprehensive text presents the essential knowledge and skills required by nurses providing this invaluable care to a growing number of children. The chapters are mapped to the Children’s Palliative Care Education and Training standards. These are endorsed by the International Children’s Palliative Care Network, a major partner with the World Health Organization in the push to make children’s palliative care a universal health right. In its three Parts, Children’s Palliative Nursing Care covers public and universal care, core nursing and specialist care. The chapters can be read individually or cumulatively to move from engagement in public health and public understanding of palliative care through to delivering nursing care. Topics range from managing symptoms and end-of-life care, to education, research and issues of quality and leadership.

Uniquely each chapter has been written by a team of authors who come from both high income and low-/middle-income countries. This makes this not just a book by nurses for nurses but a global book for global nursing practice.

Περιεχόμενα

Introduction and categorisation of children’s palliative care needs and prevalence

Duncan Randall, Susan Neilson and Julia Downing

Section 1: Public Health and Universal

1. Building and sustaining compassionate communities with children.

Anu Savio Thelly, Alice Stella Verginia, Katrina McNamara Goodgder and Peter Ellis

2. Beliefs, attitudes and values in children’s palliative care.

Alex Daniels and Maha Atout

3. Public perceptions and participation in children’s palliative care: promoting positive cultures of communication.

Duncan Randall and Hicran Çavuşoğlu

Section 2: Core

4. Delivery of unwanted news: diagnosis and assessment of needs.

Rima Saad and Stacey Power Walsh

5. Self-care for nurses and nursing teams delivering and evaluating palliative care.

Anna Oddy, Doris Ann Corkin and Becky Davis

6. Play, education and children and carer coping living with palliative care needs.

Maraliza de Haan, Angela Rackstraw and Duncan Randall

7. Symptom management

Sara Fleming, Helen Queen, and Susan Neilson

8. End-of-life care and bereavement

Tara Kerr-Elliott and Florence Nalutaya, and Stacey Power Walsh

Section 3 Specialist

9. Managing complexity.

Karen Carr, Jitka Kosikova, Tara Kerr-Elliott and Berna Basemata

10. Learning to design, deliver and evaluate children’s palliative care education.

Susan Neilson and Alex Daniels

11. Leadership for improvement.

Julia Downing and Zodwa Sithole

12. Evaluation and quality of care issues.

Marie Friedel and Lucy Coombes

13. Research readiness, and leadership.

Jane Coad, Regina Szylit, Maiara Santos and Julia Downing

Appendix A: Table of LO for CPCET UK and Ireland Education Standard Framework (including  mapping to chapters)

Appendix B: GoPaPAS Standards